Rede europeia de organizações de doentes

A Rede Europeia de Organizações de Doentes inclui todas as principais organizações de pessoas com doença respiratória da Europa. Estas organizações foram identificadas utilizando pesquisas na Internet e perguntando a peritos em todos os países europeus. Cada organização de doentes foi contactada através de um inquérito online para prestar informações sobre o seu trabalho.

Pesquise organizações de doentes, por país ou por doença, utilizando os filtros abaixo. A informação disponível está mais detalhada para as organizações de doentes que responderam ao inquérito. Tenha em consideração que nenhum destes sítios da internet foi revisto pelos nossos peritos.

Faz parte de uma organização de pessoas com doenças respiratórias a operar na Europa? Queira despender 5 minutos do seu tempo para nos contar sobre a sua organização, e adicioná-la-emos à nossa rede.

Alfa-1 Sverige

Website:

https://alfa-1.se

Coberturas:

Copd

Atividades:

Providing information for patients
Providing advice for patients
Offering a helpline service for patients
Communicating with patients via social media
Helping patients communicate with other patients via forums and support groups
Recruiting patients for clinical trials
Giving funding for research
Raising public awareness of respiratory diseases
Working with the media

LAM Academy, Sweden

Website:

http://www.lamacademy.org/

Coberturas:

Rare And Orphan Lung Disease

Atividades:

Providing information for patients
Providing advice for patients
Offering a helpline service for patients
Communicating with patients via social media
Helping patients communicate with other patients via forums and support groups
Working with the media
Communicating research and health policy to the public
Raising public awareness of respiratory diseases
Recruiting patients for clinical trials

Swedish Asthma- an allergy association

Website:

http://www.astmaoallergiforbundet.se

Coberturas:

Adult Asthma,childhood Asthma,lung Disease In Children

Atividades:

Providing information for patients
Providing advice for patients
Communicating with patients via social media
Helping patients communicate with other patients via forums and support groups
Giving funding for research
Raising public awareness of respiratory diseases
Communicating research and health policy to the public
Working with the media
Lobbying health departments or governments

The Swedish Heart and Lung Association

Website:

http://www.hjart-lung.se/

Coberturas:

Copd,tuberculosis

Atividades:

Communicating with patients via social media
Helping patients communicate with other patients via forums and support groups
Providing information for patients
Giving funding for research
Raising public awareness of respiratory diseases
Communicating research and health policy to the public
Working with the media
Lobbying health departments or governments
Translating surveys into your language to enable the views of patients in your country to be heard
Setting research priorities from the patient perspective
Joining ELF Patient Advisory Committee to represent patients at a European level