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The following activities helped us to identify what matters most to patients and caregivers in lung cancer treatment and care. 

Read a summary report of the project's consultation activities


  • Reviewed research

    A patient-centred review of published medical research and organisational literature about lung cancer formed the basis for evidence-based planning discussions and consultation throughout the project.





  • Set up a patient advisory group

    We brought together Individuals with experience of lung cancer to form a patient advisory group to help guide the direction of the project and to contribute their experiences and views.

    See who was involved.

    Patient advisory group members at ERS International Congress 2015

    Photo: Patient advisory group members at ERS International Congress 2015

  • Consulted in Europe

    Consulted in Europe

    We consulted with 400 individuals through:


    Patients, carers and healthcare professionals came together at workshops in Brussels and Amsterdam to share experiences and discuss priorities for lung cancer treatment and care. 

    Workshop in Brussels, Summer 2015Photo:  patient advisory group discussions at a workshop in Brussels


    An online questionnaire in 15 languages was disseminated to patients and caregivers in Europe to test the views emerging from the workshops with a wider group. Aquestionnaire was also circulated to lung cancer patient organisations to gather their views.

    Read our consultation summary report (Dec 2015).


  • Worked with healthcare professionals

    Worked with healthcare professionals

    The project was supported by, and worked closely with, members of the ERS lung cancer working group.

    The patient advisory group joined with members of this group at a workshop at the ERS International Congress 2015 in Amsterdam to debate multidisciplinary team working in lung cancer treatment and care.

    A joint patient-professional statement will be published to offer recommendations for good practice in this area.

    Photo of workshop in Amsterdam 2015Photo: Joint workshop of patients and healthcare professionals at ERS International Congress 2015

  • Developed patient-led guidance

    Developed patient-led guidance

    We have developed this website to signpost to quality lung cancer information in Europe for individuals who receive a diagnosis and their caregivers. 

    We are also aiming to publish a joint patient-professional statement outlining standards for multi-disciplinary team working in lung cancer care  in Europe.