Menu Search
Tell us your story


The European Lung Foundation (ELF) and European Respiratory Society (ERS) launched an innovative Patient Priorities pilot project in 2015 to develop patient-led guidance on what matters most to people affected by LAM across Europe. 

The project followed a workshop held at ERS International Congress 2014 in Munich which brought together people affected by LAM and people working in the field of LAM to discuss the priorities affecting treatment, care and research. A symposium was also held at ERS Congress outlining the findings from the workshop.