EURORDIS, an umbrella organisation for rare diseases, are setting up a number of European Reference Networks (ERNs) on rare diseases. These networks will join together medical experts and specialist centres across Europe to share knowledge and resources for patient-centred research and care of rare and complex conditions. For more information on these networks visit the EURORDIS website.
The European Lung Foundation is working with EURORDIS, healthcare professionals and patients to put together an application for funding for an ERN on rare lung conditions (ERN-LUNG). The ERN-LUNG wants to ensure that patients are at the heart of the network by including people with rare lung conditions on the management boards of the ERN-LUNG. We would like to invite anyone with a rare lung condition to apply to join these boards.
Patients and caregivers can apply. All applications will be considered equally.
EURORDIS will be coordinating the involvement of patients in these boards and ELF will also be able to provide some support.
For more information on the requirements of the E-PAG role and how E-PAGs fit within the wider project, read: