Highlights from the first-ever World Bronchiectasis Conference: a patient perspective
Thomas Ruddy, member of the ELF/EMBARC bronchiectasis patient advisory group, has written a summary of the first World Bronchiectasis Conference (Hannover, July 2016).
The first World Bronchiectasis Conference took place in Hannover in July 2016 and two members of the ELF/EMBARC bronchiectasis patient advisory group were speakers at both opening and closing sessions of the conference where they gave their perspectives on the conference as well as examples from their own experiences.
Some of the key points from the conference summary are as follows:
- A book of conference abstracts is available (see link in PDF)
- Important themes in advancing towards a “breakthrough” were:
- common definitions,
- new clinical guidelines
- patient registries
- Status of clinical guidelines in development
- Recommended research from experts and patients (link in PDF)
The second Bronchiectasis Conference will take place 6-7 July 2017 in Milan, Italy and planning is ongoing for the next in the USA in 2018.
See also our interview with Marta Almagro, member of the ELF/EMBARC bronchiectasis patient advisory group about speaking at the conference.