Open language selectionOpen language selection English Menu Search
Donate
Could you help put patient or parent views at the heart of a guideline for children with bronchiectasis?

Could you help put patient or parent views at the heart of a guideline for children with bronchiectasis?

We need patients and parents to input into the development of the first European Respiratory Society (ERS) international guideline for the management of bronchiectasis in children. 

This guideline will aim to raise awareness and encourage an evidence-based approach to the management of bronchiectasis in children and will complement the guideline for adults with bronchiectasis that was published in 2017.  

This guideline will cover bronchiectasis that is not related to cystic fibrosis. 

The guideline will be developed by a working group (called a Task Force) made up of healthcare professionals and parents/patients. 

Are you: 

  1. The parent of a child diagnosed with bronchiectasis or;
  2. Someone who was diagnosed with bronchiectasis as a child (and now aged 18 years or over).

We are looking for people diagnosed with bronchiectasis that have no other diagnosed condition (e.g. cystic fibrosis). People with a diagnosis of bronchiectasis and primary ciliary dyskinesia (PCD) are eligible to be involved.

Would you be willing to:

Activities will include:

Expenses

Any costs for getting involved in the parent/patient advisory group, such as telephone calls, travel and accommodation costs will be covered in line with our expenses policy. This is a voluntary role, and we are unable to pay for your time.

How to get involved

If you would like to find out more, please email Jeanette Boyd.

comments powered by Disqus