The European Lung Foundation (ELF) aims to bring together professionals, patients and the public to improve lung health. Therefore, its partnerships with other organisations are key.
European Respiratory Society (ERS)
Founded in 1990, the European Respiratory Society (ERS) is a not-for-profit, international medical organisation with over 10,000 members from 100 countries. It is the biggest society in Europe in its field.
ERS seeks to alleviate suffering from respiratory disease and promote lung health through research, sharing of knowledge and through medical and public education. This is achieved by:
- Publishing research and state-of-the-art knowledge in its learned journals
- Bringing together specialists in the field of respiratory medicine at its annual congress and other specialist events.
ERS founded ELF in 2000 and provides core funding for all ELF activities.
ELF does also a partner in a number of EU projects from which it receives funds.
ELF does not receive any funding from industry.
European Patient Organisation Network
The ELF network consists of patient organisations from across Europe working in the field of lung health. View the European Patient Organisation Network database to find out more about your local organisations, including their agendas and contact details. If you know of other organisations that you would like us to include, please send us their contact information.
European Medicines Agency
ELF works with the European Medicines Agency (EMA) as an eligible patients and consumers organisation. This means that ELF helps to find patient experts for EMA patient involvement opportunities; for example, to review the information that is included with medications, called a package leaflet, to make sure that it can be understood by patients.
ELF is also a member of two EMA topic groups to raise awareness and improve how patients are involved in the work of the EMA.
International Alliance of Patients’ Organizations
ELF is a member of the International Alliance of Patients’ Organizations (IAPO), a global alliance representing patients of all nations across all disease areas. ELF supports IAPO’s efforts to promote patient-centred healthcare around the world.
EURORDIS-Rare Diseases Europe
ELF is an associate member of EURORDIS-Rare Diseases Europe. EURORDIS is a non-profit alliance of over 700 rare disease patient organisations from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
ELF is working with EURORDIS on the European Reference Network for rare lung conditions, ERN-Lung, to ensure that patients are involved and represented within this initiative.