The European Lung Foundation (ELF) works to communicate the work of the European Respiratory Society (ERS) to those outside the field of lung health. ELF also works to ensure that people with lung diseases and the general public have the opportunity to influence respiratory research and guidelines at the European level. In order to reach these aims ELF is involved in many different activities.
Promoting lung health
ELF works to communicate and translate the work of the ERS to those outside the respiratory field.
- The ELF website provides lung information to the public in 8 different languages
- ELF factsheets, developed with patients and ERS experts, provide reliable and accurate patient information
- Press releases and lay summaries allow the media and the public to access papers from the European Respiratory Journal (ERJ) and abstracts from the ERS Congress
- Daily news stories about respiratory research and treatment give the public easy access to new developments internationally
- Public awareness campaigns, such as Healthy Lungs for Life, encourage the people of the world to care about their lung health
- Working with lung-orientated EU projects ensures dissemination of key messages and findings to patients and the public
Involving patients in healthcare
ELF also works to ensure that people with lung diseases and the general public have the opportunity to influence respiratory research and guidelines at the European level.
- A network and an advisory group of patient organisations across Europe, covering all respiratory disease areas, inputs into and advises the ELF and ERS
- The European Patient Ambassador Programme helps train patients and support them in their interactions with doctors, policy makers and the media
- Managing patient involvement in ERS task forces facilitates the development of patient-centred guidelines and consensus statements
- Sourcing patients to speak in ERS symposia enables the patients perspective to be heard at the Congress
- Encouraging patients to discuss the issues important to them with policy makers strengthens the respiratory voice at the European level.