The Patient Advisory Committee (PAC) plays an important role in all ELF strategic activities. The committee is formed of 20 patient organisations from across Europe which represent a wide range of lung disease patients at local, national and European level.
ELF values having a committee made up of diverse organisations – this allows ELF to understand the priorities of people living with lung conditions from different communities, health systems and backgrounds and helps us to advocate for better lung health for all.
The PAC is a sub-committee of the ELF Council, the main body of ELF. For full details of the aims and responsibilities of the committee, please read the Terms of Reference. To see where the PAC sits within ELF’s governance, please look at the ELF structure on our website.
All PAC positions are open for recruitment in 2023. Current and new organisations are invited to apply to join the committee.
ELF would like to recruit members who are interested in actively working with us and other organisations across Europe to raise awareness about lung health and to support patients and the public to contribute to the future of respiratory healthcare.
Members should meet the following criteria:
In order to ensure the PAC represents as wide a range of patient communities as possible, we are keen to receive applications from organisations working at a local, national and European level. Applicant organisations can represent a single disease or multiple diseases and applications from organisations representing lesser-heard patient voices are encouraged, such as young people, those from disadvantaged backgrounds and those representing rare and ultra-rare lung diseases.
As part of the PAC, organisations have the chance to:
Organisations joining the PAC will be appointed for a three-year period, until December 2026.
The committee meets four times per year. Three of those meetings are normally held by video conference and one meeting is held in person during the ERS International Congress in a European city each year. Video conferencing costs for participation are covered by ELF. There is the opportunity to apply for a bursary towards the costs of attending the face to face meeting at the ERS Congress.
If your organisation is interested in joining the PAC, please complete the application form by Friday 10 November 2023.
Current members of the PAC and the ELF Council will review the applications. The ELF Chair has the final decision for appointing committee members.
Members will be selected to ensure a good balance of disease areas, European countries, patient communities and expertise.
Applicants will be informed of the outcome of their application in December 2023, with the first meeting of the new PAC in early 2024.
We look forward to receiving your application!