Rede europeia de organizações de doentes
A Rede Europeia de Organizações de Doentes inclui todas as principais organizações de pessoas com doença respiratória da Europa. Estas organizações foram identificadas utilizando pesquisas na Internet e perguntando a peritos em todos os países europeus. Cada organização de doentes foi contactada através de um inquérito online para prestar informações sobre o seu trabalho.
Pesquise organizações de doentes, por país ou por doença, utilizando os filtros abaixo. A informação disponível está mais detalhada para as organizações de doentes que responderam ao inquérito. Tenha em consideração que nenhum destes sítios da internet foi revisto pelos nossos peritos.
Faz parte de uma organização de pessoas com doenças respiratórias a operar na Europa? Queira despender 5 minutos do seu tempo para nos contar sobre a sua organização, e adicioná-la-emos à nossa rede.
networks found.
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ACSI - Amici Contro la Sarcoidosi Italia ONLUS
ACSI - Amici Contro la Sarcoidosi Italia ONLUS
- Website:
- http://www.sarcoidosi.org/
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Action for Pulmonary Fibrosis
Action for Pulmonary Fibrosis
- Website:
- http://www.actionpulmonaryfibrosis.org/
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Giving funding for research
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Providing information for patients
-
AEPNAA, Spain
AEPNAA, Spain
- Website:
- http://www.aepnaa.org
- Covers:
- Other Lung Diseases,adult Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Aha! Centre D'Allergie Suisse
Aha! Centre D'Allergie Suisse
- Website:
- http://www.aha.ch
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,lung Disease In Children,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Providing information for patients
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating with patients via social media
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Alfa-1 Danmark
Alfa-1 Danmark
- Website:
- http://www.lunge.dk/alfa-1-danmark
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Meetings for and with patients
-
ALIANZA AIRE
ALIANZA AIRE
- Website:
- http://www.alianzaaire.es
- Covers:
- Acute Lower Respiratory Infections
- Activities:
- Lobbying health departments or governments
- Working with the media
- Raising public awareness of respiratory diseases
- Communicating with patients via social media
-
Alpha Europe Federation
Alpha Europe Federation
- Website:
- http://www.alphafederation.org/
- Covers:
- Other Lung Diseases
- Activities:
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Lobbying health departments or governments
- Supporting associations in European member states
-
Alpha One Foundation, Ireland
Alpha One Foundation, Ireland
- Website:
- http://www.alpha1.ie/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Alpha-1 Foundation - USA
Alpha-1 Foundation - USA
- Website:
- http://www.alpha1.org/
- Covers:
- Copd,lung Cancer,lung Disease In Children,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
Alpha-1 plus asbl
Alpha-1 plus asbl
- Website:
- Covers:
- Rare And Orphan Lung Disease,copd,other Lung Diseases
- Activities:
- Lobbying health departments or governments
- Working with the media
- Raising public awareness of respiratory diseases
- Communicating with patients via social media
- Providing advice for patients
- Providing information for patients
-
Alpha-1 UK Support Group
Alpha-1 UK Support Group
- Website:
- http://www.alpha1.org.uk/
- Covers:
- Adult Asthma,bronchiectasis,copd,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Alpha1 Deutschland e.V.
Alpha1 Deutschland e.V.
- Website:
- www.alpha1-deutschland.org
- Covers:
- Other Lung Diseases,rare And Orphan Lung Disease
- Activities:
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Recruiting patients for clinical trials
- Helping patients communicate with other patients via forums and support groups
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
- Working with the media
-
Alpha1 Netzwerk e.V.
Alpha1 Netzwerk e.V.
- Website:
- http://www.alpha1-netzwerk.de/
- Covers:
- Other Lung Diseases,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
AMA Fuori dal Buio, Italy
AMA Fuori dal Buio, Italy
- Website:
- http://www.fuoridalbuio.it/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Student internships and study guidance
-
ApneuVereniging Vlaanderen
ApneuVereniging Vlaanderen
- Website:
- www.ApneuVereniging.be
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Working with the media
- Communicating with patients via social media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Lobbying health departments or governments
- Giving funding for research
-
ApneuVereniging Vlaanderen, Belgium
ApneuVereniging Vlaanderen, Belgium
- Website:
- http://www.ApneuVereniging.be
- Covers:
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Asociación de Asmáticos de Madrid (ASMAMADRID)
Asociación de Asmáticos de Madrid (ASMAMADRID)
- Website:
- http://www.asmamadrid.org/
- Covers:
- Adult Asthma,childhood Asthma,lung Disease In Children
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Organising courses and workshops on asthma knowledge, use of inhalers, asthma springtime Preventing, Pediatric Asthma, adult asthma
- In October 2012 organised by ASMAMADRID: 1st Course on asthma for health professionals, doctors, nurses in the SUMMA 112, (Servcio Emergency and medical emergencies Madrid) (academic accreditation by the Ministry of Health, Regional Ministry of Health the Madrid CAM)
-
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopatica (AFEFPI), Spain
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopatica (AFEFPI), Spain
- Website:
- http://www.afefpi.org/
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Asociacion Española de Afectados de Cáncer de Pulmón (AEACaP), Spain
Asociacion Española de Afectados de Cáncer de Pulmón (AEACaP), Spain
- Website:
- http://aeacap.org/web/
- Covers:
- Lung Cancer
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Communicating research and health policy to the public
- Informative courses, prevention-focused meetings, awareness campaigns, free psychological assistance, anti-smoking workshops, legal advice
-
Asociación Nacional de Hipertensión Pulmonar, Spain
Asociación Nacional de Hipertensión Pulmonar, Spain
- Website:
- http://www.hipertensionpulmonar.es/
- Covers:
- Pulmonary Vascular Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Pharma covigilance
-
Asociatia Romana a Bolnavilor de Tuberculoza (ARB-TB)
Asociatia Romana a Bolnavilor de Tuberculoza (ARB-TB)
- Website:
- http://www.arb-tb.ro/
- Covers:
- Tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
-
Associación Nacional de Enfermos de Sarcoidosis, Spain
Associación Nacional de Enfermos de Sarcoidosis, Spain
- Website:
- http://www.sarcoidosis.es/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
- Helping patients communicate with other patients via forums and support groups
-
Association Departementale des Insuffisants Respiratoires (ADIR31), France
Association Departementale des Insuffisants Respiratoires (ADIR31), France
- Website:
- http://www.adir31.fr
- Covers:
- Copd,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Weekly meeting groups of therapeutic education
-
Association des deficitaires en Alpha-1 Antitrypsine (ADAAT), France
Association des deficitaires en Alpha-1 Antitrypsine (ADAAT), France
- Website:
- http://www.alpha1-france.org
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,copd,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Association for Cystic Fibrosis, Greece
Association for Cystic Fibrosis, Greece
- Website:
- http://www.cfathess.gr/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Association for Patients with Lung Disease (APLD) - TURKEY
Association for Patients with Lung Disease (APLD) - TURKEY
- Website:
- www.ahdeder.com (under construction)
- Covers:
- Pulmonary Vascular Disease,sleep Disordered Breathing,other Lung Diseases,acute Lower Respiratory Infections,adult Asthma,bronchiectasis,copd,childhood Asthma,cystic Fibrosis,interstitial Lung Disease,lung Cancer,acute Respiratory Distress Syndrome,lung Disease In Children,occupational Lung Disease,rare And Orphan Lung Disease,tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Association for the people with alpha-1 antitripsin deficency in Poland
Association for the people with alpha-1 antitripsin deficency in Poland
- Website:
- https://a1at.wordpress.com/
- Covers:
- Copd,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
Association Histiocytose, France
Association Histiocytose, France
- Website:
- http://www.histiocytose.org/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Giving funding for research
-
Association of Parents of Asthmatic Children of Zagreb
Association of Parents of Asthmatic Children of Zagreb
- Website:
- www.astma-udruga.com
- Covers:
- Childhood Asthma
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Working with the media
- Helping patients communicate with other patients via forums and support groups
-
Association pour la fibrose pulmonaire idiopathique Pierre ENJALRAN - France
Association pour la fibrose pulmonaire idiopathique Pierre ENJALRAN - France
-
Associazione Apnoici Italiani- ONLUS
Associazione Apnoici Italiani- ONLUS
- Website:
- http://www.apneedelsonno.it
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Working with the media
- Communicating with patients via social media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Lobbying health departments or governments
-
Associazione Italiana Pazienti BPCO Onlus
Associazione Italiana Pazienti BPCO Onlus
- Website:
- http://www.pazientibpco.it/
- Covers:
- Copd
- Activities:
- Providing information for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
Associazione Italiana Pazienti con Apnee del Sonno-ONLUS (A.I.P.A.S.-ONLUS)
Associazione Italiana Pazienti con Apnee del Sonno-ONLUS (A.I.P.A.S.-ONLUS)
- Website:
- http://www.sleepapnea-online.it
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Working with the media
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Offering a helpline service for patients
-
Associazione Respirando, Italy
Associazione Respirando, Italy
- Website:
- www.associazionerespirando.org
- Covers:
- Cystic Fibrosis,rare And Orphan Lung Disease,lung Disease In Children,sleep Disordered Breathing,acute Respiratory Distress Syndrome,other Lung Diseases
- Activities:
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
-
Associazione RespiRARE Onlus per le malattie rare del polmone
Associazione RespiRARE Onlus per le malattie rare del polmone
- Website:
- www.respirare.eu
- Covers:
- Rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
ASSOCIAZIONE RESPIRIAMO MISURINA, ITALY
ASSOCIAZIONE RESPIRIAMO MISURINA, ITALY
- Website:
- http://www.respiriamomisurina.org
- Covers:
- Adult Asthma,copd,bronchiectasis,acute Respiratory Distress Syndrome,acute Lower Respiratory Infections,interstitial Lung Disease
- Activities:
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Providing advice for patients
- Providing information for patients
-
Associazione ReSpirone (onlus)
Associazione ReSpirone (onlus)
- Website:
- http://www.respirone.it
- Covers:
- Adult Asthma,lung Disease In Children,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
-
Asthma and Allergy Association Latvia
Asthma and Allergy Association Latvia
- Website:
- www.astmaalergija.lv
- Covers:
- Adult Asthma,childhood Asthma
- Activities:
- Communicating with patients via social media
- Working with the media
- Providing information for patients
- Providing advice for patients
-
Asthma UK
Asthma UK
- Website:
- http://www.asthma.org.uk
- Covers:
- Adult Asthma,childhood Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Astma Allergi, Denmark
Astma Allergi, Denmark
- Website:
- http://www.astma-allergi.dk/
- Covers:
- Adult Asthma,childhood Asthma,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Astma en allergie koepel, Belgium
Astma en allergie koepel, Belgium
- Website:
- http://www.astma-en-allergiekoepel.be/
- Covers:
- Adult Asthma,childhood Asthma,copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Astma-Allergia-POCHP Poland
Astma-Allergia-POCHP Poland
- Website:
- www.astma-alergia-pochp.pl
- Covers:
- Adult Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Belgian Association for Pulmonary fibrosis
Belgian Association for Pulmonary fibrosis
- Website:
- http://www.longfibrose.org/
- Covers:
- Rare And Orphan Lung Disease,interstitial Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Giving funding for research
- Lobbying health departments or governments
- Working with the media
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
-
Belgian Cystic Fibrosis Association
Belgian Cystic Fibrosis Association
- Website:
- www.muco.be/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Breathe Bright Rest Easy Respiratory Group
Breathe Bright Rest Easy Respiratory Group
- Website:
- http://www.breathebrightresteasy.co.uk/
- Covers:
- Adult Asthma,copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Raising public awareness of respiratory diseases
-
Breathtakers OB Trust, UK
Breathtakers OB Trust, UK
- Website:
- http://www.breathtakers.org.uk/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
British Lung Foundation
British Lung Foundation
- Website:
- http://www.blf.org.uk
- Covers:
- Adult Asthma,childhood Asthma,copd,cystic Fibrosis,bronchiectasis,lung Disease In Children,tuberculosis,acute Lower Respiratory Infections,acute Respiratory Distress Syndrome,lung Cancer,pulmonary Vascular Disease,interstitial Lung Disease,sleep Disordered Breathing,occupational Lung Disease,other Lung Diseases,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
-
British Snoring & Sleep Apnoea Association
British Snoring & Sleep Apnoea Association
- Website:
- http://www.britishsnoring.co.uk
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
ČARO (Česká aliance proti chronickým respiračním onemocněním)
ČARO (Česká aliance proti chronickým respiračním onemocněním)
- Website:
- http://www.caro-gard.cz/
- Covers:
- Adult Asthma,copd,cystic Fibrosis,acute Lower Respiratory Infections,lung Cancer,tuberculosis,interstitial Lung Disease,occupational Lung Disease,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social medi
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
- Cooperation between different specialists
-
Český občanský spolek proti plicním nemocem CHOPN
Český občanský spolek proti plicním nemocem CHOPN
- Website:
- http://www.copn.cz
- Covers:
- Copd
- Activities:
- Providing advice for patients
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
CF EUROPE
CF EUROPE
- Website:
- http://www.cf-europe.eu
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
CF Foundation MATIO Ploand
CF Foundation MATIO Ploand
- Website:
- http://www.mukowiscydoza.pl/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
CF Greece (Hellenic CF Association)
CF Greece (Hellenic CF Association)
- Website:
- http://www.cysticfibrosis.gr/index.php/en/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Helping patients communicate with other patients via forums and support groups
-
CF TEAM, Austria
CF TEAM, Austria
- Website:
- http://cf-team.at/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Working with the media
- Lobbying health departments or governments
-
ChILD Lung Foundation (UK)
ChILD Lung Foundation (UK)
- Website:
- http://childlungfoundation.org
- Covers:
- Lung Disease In Children
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
-
Communicable Diseases Intensive Care Association (INCURE), Ukraine
Communicable Diseases Intensive Care Association (INCURE), Ukraine
- Website:
- http://en.incure.info/
- Covers:
- Tuberculosis,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Working with the media
- Lobbying health departments or governments
- Providing information for doctors and health managers
-
COPD VZW Belgium
COPD VZW Belgium
- Website:
- website under construction
- Covers:
- Copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Working with the media
- Communicating with patients via social media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Lobbying health departments or governments
-
COPD - Deutschland e.V.
COPD - Deutschland e.V.
- Website:
- http://www.copd-deutschland.de/
- Covers:
- Bronchiectasis,copd,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
COPD Support Ireland
COPD Support Ireland
- Website:
- http://www.livingwithcopd.ie/
- Covers:
- Copd
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Providing advice for patients
- Providing information for patients
-
Cork COPD Support Group
Cork COPD Support Group
- Website:
- http://www.copdsupport.ie/
- Covers:
- Copd
- Activities:
We meet once in two months for an hour or so, some times with a professional. Our main activity is:
- Helping patients communicate with other patients via forums and support groups
-
Croatian Alliance for Rare Diseases
Croatian Alliance for Rare Diseases
- Website:
- http://www.rijetke-bolesti.hr/
- Covers:
- Cystic Fibrosis,pulmonary Vascular Disease,sleep Disordered Breathing,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Cyprus Respiratory Patients Assosiation
Cyprus Respiratory Patients Assosiation
- Website:
- https://www.Facebook.com/pnevmonopatheis
- Covers:
- Acute Respiratory Distress Syndrome,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,pulmonary Vascular Disease,occupational Lung Disease,tuberculosis,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Cystic Fibrosis Association of Slovenia
Cystic Fibrosis Association of Slovenia
- Website:
- http://www.drustvocf.si/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Cystic Fibrosis Ireland
Cystic Fibrosis Ireland
- Website:
- http://www.cfireland.ie/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Cystic Fibrosis UK
Cystic Fibrosis UK
- Website:
- http://www.cysticfibrosis.org.uk
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Danish Lung Association
Danish Lung Association
- Website:
- http://www.lunge.dk
- Covers:
- Acute Respiratory Distress Syndrome,acute Lower Respiratory Infections,adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,occupational Lung Disease,other Lung Diseases,pulmonary Vascular Disease,sleep Disordered Breathing,tuberculosis,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Deutsche Atemwegsliga e.V.
Deutsche Atemwegsliga e.V.
- Website:
- http://www.atemwegsliga.de
- Covers:
- Acute Lower Respiratory Infections,acute Respiratory Distress Syndrome,adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,pulmonary Vascular Disease,occupational Lung Disease,sleep Disordered Breathing,tuberculosis,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Deutsche Sarkoidose-Vereinigung e.V.
Deutsche Sarkoidose-Vereinigung e.V.
- Website:
- http://www.Sarkoidose.de
- Covers:
- Interstitial Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Stakeholder for Sarcoidosis patients in HTA and Reimbursement procedures
-
Deutscher Lungentag e.V.
Deutscher Lungentag e.V.
- Website:
- http://www.lungentag.de/
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,pulmonary Vascular Disease,occupational Lung Disease,sleep Disordered Breathing,tuberculosis,other Lung Diseases,acute Respiratory Distress Syndrome
- Activities:
- Each year the organisation focuses on a different subject although asthma and COPD remain the most important issues because of the huge number of patients
- Raising public awareness of respiratory diseases
- Working with the media
-
DPOC.PT
DPOC.PT
- Website:
- http://dpoc.pt/
- Covers:
- Copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
Dutch Pulmonary Fibrosis Society
Dutch Pulmonary Fibrosis Society
- Website:
- http://www.longfibrose.nl/
- Covers:
- Interstitial Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
-
Estonian Allergy Federation
Estonian Allergy Federation
- Website:
- http://www.allergialiit.ee/
- Covers:
- Adult Asthma,childhood Asthma,lung Disease In Children,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Raising public awareness of respiratory diseases
- Working with the media
-
Estonian Lung Association
Estonian Lung Association
- Website:
- http://www.kopsuliit.ee/
- Covers:
- Adult Asthma,copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
European Alpha1 Foundation / Alpha1 Stiftung, Germany
European Alpha1 Foundation / Alpha1 Stiftung, Germany
- Website:
- http://www.alpha1-europe.eu/
- Covers:
- Rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
European Cancer Patient Coalition
European Cancer Patient Coalition
- Website:
- http://www.ecpc.org/
- Covers:
- Lung Cancer
- Activities:
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
European Federation of Allergy and Airways Diseases Patients' Associations (EFA)
European Federation of Allergy and Airways Diseases Patients' Associations (EFA)
- Website:
- http://www.efanet.org
- Covers:
- Adult Asthma,childhood Asthma,copd,lung Disease In Children
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Project management
-
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation ivzw
- Website:
- http://www.eu-ipff.org/
- Covers:
- Rare And Orphan Lung Disease,interstitial Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Lobbying health departments or governments
- Working with the media
- Raising public awareness of respiratory diseases
- Coordinating between european IPF organisations
- Helping patients to establish a national IPF organisation in countries were they do not exist yet
-
European pulmonary hypertension association (PHA)
European pulmonary hypertension association (PHA)
- Website:
- http://www.phaeurope.org/
- Covers:
- Pulmonary Vascular Disease,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Federacion Española de Fibrosis Quística
Federacion Española de Fibrosis Quística
- Website:
- http://www.fibrosisquistica.org/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Federación Nacional de Asociaciones de Enfermedades Respiratorias (FENAER), Spain
Federación Nacional de Asociaciones de Enfermedades Respiratorias (FENAER), Spain
- Website:
- http://www.fenaer.es
- Covers:
- Adult Asthma,bronchiectasis,childhood Asthma,copd,lung Disease In Children,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
FederASMA e ALLERGIE onlus – Federazione italiana pazienti
FederASMA e ALLERGIE onlus – Federazione italiana pazienti
- Website:
- http://www.federasma.org
- Covers:
- Acute Respiratory Distress Syndrome,adult Asthma,lung Disease In Children,occupational Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Federation Francaise des Associations et Amicales de malades, Insuffisants ou handicapes Respiratoires (FFAAIR)
Federation Francaise des Associations et Amicales de malades, Insuffisants ou handicapes Respiratoires (FFAAIR)
- Website:
- http://www.ffaair.org/
- Covers:
- Adult Asthma,bronchiectasis,copd,cystic Fibrosis,lung Disease In Children,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
-
Finnish Allergy and Asthma Federation
Finnish Allergy and Asthma Federation
- Website:
- http://www.allergia.fi
- Covers:
- Adult Asthma,childhood Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Fondazione Ricera Fibrosi Cistica Onlus, Italy
Fondazione Ricera Fibrosi Cistica Onlus, Italy
- Website:
- http://www.fibrosicisticaricerca.it/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Promoting and supporting scientific research in cystic fibrosis
- Communicating research and health policy to the public
-
Fonds des Affections respiratoires (FARES), Belgium
Fonds des Affections respiratoires (FARES), Belgium
- Website:
- http://www.fares.be/
- Covers:
- Adult Asthma,copd,tuberculosis
- Activities:
- Providing information for patients
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
France Lymphangioléiomyomatose (FLAM)
France Lymphangioléiomyomatose (FLAM)
- Website:
- www.francelam.org
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Fundação Portuguesa do Pulmão
Fundação Portuguesa do Pulmão
- Website:
- http://www.fundacaoportuguesadopulmao.org
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,sleep Disordered Breathing,tuberculosis,occupational Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Fundación contra la Hipertensión Pulmonar, Spain
Fundación contra la Hipertensión Pulmonar, Spain
- Website:
- http://www.fchp.es/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Fundación Lovexair, Spain
Fundación Lovexair, Spain
- Website:
- http://www.lovexair.com/html/
- Covers:
- Adult Asthma,bronchiectasis,childhood Asthma,copd,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Developing chronic respiratory disease self-management programs and working on a smoking helpline and a program to detect and prevent lung disease amongst the working population
-
Fundación Respiralia, Spain
Fundación Respiralia, Spain
- Website:
- http://www.respiralia.org/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Chest therapy, Kinesiology, Osteopathy and physical training sessions to patients
-
Fungal Infection Trust, UK
Fungal Infection Trust, UK
- Website:
- http://www.fungalinfectiontrust.org
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Offering a helpline service for patients
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
- Giving funding for research
-
Global Allergy Asthma Patient Platform, GAAPP
- Website:
- http://www.ga2p2.org/
- Covers:
- Adult Asthma,childhood Asthma,copd,occupational Lung Disease,rare And Orphan Lung Disease,acute Lower Respiratory Infections
- Activities:
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
-
HALO "self-help Association heart/lung-& lung transplantation" Belgium
HALO "self-help Association heart/lung-& lung transplantation" Belgium
- Website:
- http://www.halovzw.info
- Covers:
- Other Lung Diseases
- Activities:
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Offering a helpline service for patients
- Providing information for patients
- Providing advice for patients
- Communicatijg research to patients
-
Hipertensión Pulmonar España Organización de Pacientes
Hipertensión Pulmonar España Organización de Pacientes
- Website:
- http://www.hipertension-pulmonar.com/
- Covers:
- Pulmonary Vascular Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Recruiting patients for clinical trials
- Helping patients communicate with other patients via forums and support groups
-
Hungarian Cystic Fibrosis Foundation
Hungarian Cystic Fibrosis Foundation
- Website:
- http://www.ocfe.hu/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Lobbying health departments or governments
-
Hungarian Respiratory Patients Society
Hungarian Respiratory Patients Society
- Website:
- http://tudoklub.hu/lebe
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,copd,lung Cancer,tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Lobbying health departments or governments
-
Hungarian Respiratory Society
Hungarian Respiratory Society
- Website:
- http://www.tudogyogyasz.hu
- Covers:
- Adult Asthma,copd,cystic Fibrosis,bronchiectasis,lung Disease In Children,tuberculosis,lung Cancer,interstitial Lung Disease,occupational Lung Disease,other Lung Diseases,pulmonary Vascular Disease,sleep Disordered Breathing,acute Lower Respiratory Infections,acute Respiratory Distress Syndrome,childhood Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Inspira vida (Serbian Asthma and Allergy Association)
Inspira vida (Serbian Asthma and Allergy Association)
- Website:
- www.astma.rs
- Covers:
- Adult Asthma,childhood Asthma,copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Irish Cancer Society
Irish Cancer Society
- Website:
- http://www.cancer.ie/
- Covers:
- Lung Cancer
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Irish Lung Fibrosis Association (ILFA)
Irish Lung Fibrosis Association (ILFA)
- Website:
- http://www.ilfa.ie
- Covers:
- Interstitial Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Irish Sarcoidosis Support Network
Irish Sarcoidosis Support Network
- Website:
- http://www.isarc.ie/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helping service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Japan Federation of Patient Organizations for Respiratory Disease
Japan Federation of Patient Organizations for Respiratory Disease
- Website:
- http://www.jrs.or.jp/jrs_patient/
- Covers:
- Copd,bronchiectasis,pulmonary Vascular Disease,interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
JEDRA Organisation, Croatia
JEDRA Organisation, Croatia
- Website:
- http://www.jedra.com.hr/
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,pulmonary Vascular Disease,sleep Disordered Breathing,rare And Orphan Lung Disease,acute Respiratory Distress Syndrome
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Klub nemocných cystickou fibrózou, Czech Republic
Klub nemocných cystickou fibrózou, Czech Republic
- Website:
- http://www.cfklub.cz/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
L'Association Luxembourgeoise de Lutte contre la Mucoviscidose (ALLM)
L'Association Luxembourgeoise de Lutte contre la Mucoviscidose (ALLM)
- Website:
- http://www.allm.lu/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
- Providing material and social support to patients
-
LAM Academy - Sweden
LAM Academy - Sweden
- Website:
- www.lamacademy.org
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Recruiting patients for clinical trials
-
LAM Action UK
LAM Action UK
- Website:
- http://lamaction.org/
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
-
Lam Italia Onlus
Lam Italia Onlus
- Website:
- http://www.lam-italia.org
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
LAM Selbsthilfe Deutschland (e.V.)
LAM Selbsthilfe Deutschland (e.V.)
- Website:
- http://www.lam-info.de/
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Offering a helpline service for patients
- Recruiting patients for clinical trials
- Giving funding for research
-
LAM Support Ireland
-
Latvijas Cistiskas fibrozes biedriba
Latvijas Cistiskas fibrozes biedriba
- Website:
- http://cistiskafibroze.lv/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Working with the media
- Lobbying health departments or governments
-
Lega Italiana Anti Fumo (LIAF)
Lega Italiana Anti Fumo (LIAF)
- Website:
- http://www.liaf-onlus.org/
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,bronchiectasis,copd,pulmonary Vascular Disease,sleep Disordered Breathing,acute Respiratory Distress Syndrome
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Liberia Asthma Society, Liberia
Liberia Asthma Society, Liberia
- Website:
- Covers:
- Adult Asthma,childhood Asthma,pulmonary Vascular Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Lithuanian Council of Patient Organisations
Lithuanian Council of Patient Organisations
- Website:
- www.pacientutaryba.lt
- Covers:
- Adult Asthma,cystic Fibrosis,lung Cancer,pulmonary Vascular Disease,interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
Lithuanian Cystic Fibrosis Assosiation
Lithuanian Cystic Fibrosis Assosiation
- Website:
- http://www.cistinefibroze.lt/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Lobbying health departments or governments
- Helping patients communicate with other patients via forums and support groups
-
Longfonds, Netherlands
Longfonds, Netherlands
- Website:
- https://www.longfonds.nl/
- Covers:
- Adult Asthma,bronchiectasis,copd,cystic Fibrosis,interstitial Lung Disease,lung Disease In Children,pulmonary Vascular Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Lobbying health departments or governments
- Helping patients communicate with other patients via forums and support groups
-
LOT-Austria
LOT-Austria
- Website:
- http://www.selbsthilfe-lot.at/ueberunsvorstand.php
- Covers:
- Copd,cystic Fibrosis,pulmonary Vascular Disease,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Recruiting patients for clinical trials
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
- Building up pan-european network for COPD, IPF and O2-long-term
-
Lungenemphysem-COPD, Deutschland
Lungenemphysem-COPD, Deutschland
- Website:
- http://www.lungenemphysem-copd.de
- Covers:
- Bronchiectasis,copd,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Lungenfibrose e.V. - Deutschland
Lungenfibrose e.V. - Deutschland
- Website:
- http://www.lungenfibrose.de/
- Covers:
- Rare And Orphan Lung Disease,interstitial Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Communicating research and health policy to the public
-
Lungenfibrose Forum Austria
Lungenfibrose Forum Austria
- Website:
- https://www.lungenfibroseforum.at/
- Covers:
- Interstitial Lung Disease
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
-
Lungenliga / Ligue pulmonaire / Lega polmonare
Lungenliga / Ligue pulmonaire / Lega polmonare
- Website:
- http://www.lungenliga.ch http://www.liguepulmonaire.ch http://www.legapolmonare.ch
- Covers:
- Cystic Fibrosis,lung Cancer,rare And Orphan Lung Disease,tuberculosis,copd,adult Asthma
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Giving funding for research
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
- Other: Taking care of patients (more than 80'000 Patients in Switzerland)
-
Lviv City Charitable Foundation of "Sister Dalila", Ukraine
Lviv City Charitable Foundation of "Sister Dalila", Ukraine
- Website:
- http://poryatunok.info/uk/
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Malta Health Network
Malta Health Network
- Website:
- www.maltahealthnetwork.org
- Covers:
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
MCRN Hungary
MCRN Hungary
- Website:
- http://www.mcrn.hu
- Covers:
- Childhood Asthma,cystic Fibrosis,lung Disease In Children,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Recruiting patients for clinical trials
- Lobbying health departments or governments
-
Merseyside Asbestos Victims Support Group, UK
Merseyside Asbestos Victims Support Group, UK
- Website:
- http://www.asbestosdiseases.org.uk/
- Covers:
- Copd,interstitial Lung Disease,lung Cancer,occupational Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Mesothelioma Group
Mesothelioma Group
- Website:
- http://www.mesotheliomagroup.com
- Covers:
- Lung Cancer,occupational Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Mesothelioma Resource Online USA
Mesothelioma Resource Online USA
- Website:
- www.mesotheliomasymptoms.com
- Covers:
- Lung Cancer,copd,occupational Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
-
Mesothelioma UK
Mesothelioma UK
- Website:
- http://www.mesothelioma.uk.com/
- Covers:
- Lung Cancer,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Communicating research and health policy to the public
-
National Aspergillosis Centre, UK
National Aspergillosis Centre, UK
- Website:
- http://www.nationalaspergillosiscentre.org.uk
- Covers:
- Adult Asthma,childhood Asthma,cystic Fibrosis,tuberculosis,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Offering a helpline service for patients
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
-
National Association for Cystic Fibrosis, Russia
National Association for Cystic Fibrosis, Russia
- Website:
- http://www.mukoviscidoz.org/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- The members of the organization are medical workers, researches, patients with CF and their parents and anyone who wants to improve the CF service in Russia
-
National Asthma Council Australia
National Asthma Council Australia
- Website:
- www.nationalasthma.org.au
- Covers:
- Adult Asthma,childhood Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Nontuberculous Mycobacterial Info & Research
Nontuberculous Mycobacterial Info & Research
- Website:
- http://www.ntminfo.org/
- Covers:
- Bronchiectasis,copd,cystic Fibrosis,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Norwegian Asthma and Allergy Association
Norwegian Asthma and Allergy Association
- Website:
- http://www.naaf.no
- Covers:
- Adult Asthma,childhood Asthma,copd,lung Disease In Children
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Österreichische Lungenunion, Austria
Österreichische Lungenunion, Austria
- Website:
- http://www.lungenunion.at
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,bronchiectasis,copd,interstitial Lung Disease,lung Cancer,lung Disease In Children,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Pakistan Chest Society (Regd)
Pakistan Chest Society (Regd)
- Website:
- http://www.pakchestsociety.org/
- Covers:
- Acute Lower Respiratory Infections,acute Respiratory Distress Syndrome,adult Asthma,bronchiectasis,copd,interstitial Lung Disease,lung Cancer,lung Disease In Children,occupational Lung Disease,tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
PCD Family Support Group UK
PCD Family Support Group UK
- Website:
- http://www.pcdsupport.org.uk
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
-
Pediatric Lung Association Pakistan
Pediatric Lung Association Pakistan
- Website:
- www.hhf.org.pk
- Covers:
- Adult Asthma,childhood Asthma,cystic Fibrosis,bronchiectasis,lung Disease In Children,tuberculosis,acute Lower Respiratory Infections,interstitial Lung Disease,sleep Disordered Breathing,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
PH Belgium
PH Belgium
- Website:
- http://www.ph-vzw.be/
- Covers:
- Pulmonary Vascular Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
PHA Ukraine
PHA Ukraine
- Website:
- http://pha.org.ua/
- Covers:
- Pulmonary Vascular Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Polish Federation of Asthma, Allergy and COPD Patients
Polish Federation of Asthma, Allergy and COPD Patients
- Website:
- http://www.astma-alergia-pochp.pl/
- Covers:
- Acute Lower Respiratory Infections,adult Asthma,copd,lung Cancer
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Giving funding for research
- Working with the media
- Lobbying health departments or governments
-
Prévention des Allergies, Brussels
Prévention des Allergies, Brussels
- Website:
- http://www.oasis-allergies.org/
- Covers:
- Adult Asthma,copd
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Working in partnership with other associations
-
Pulmonary and allergic patients association of Slovenia
Pulmonary and allergic patients association of Slovenia
- Website:
- http://www.dpbs.si/
- Covers:
- Adult Asthma,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Pulmonary Fibrosis Advocates, USA
Pulmonary Fibrosis Advocates, USA
- Website:
- http://www.pfadvocates.org
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Lobbying health departments or governments
-
Pulmonary Fibrosis Foundation, USA
Pulmonary Fibrosis Foundation, USA
- Website:
- http://www.pulmonaryfibrosis.org/
- Covers:
- Interstitial Lung Disease
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Giving funding for research
- Recruiting patients for clinical trials
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
-
Pulmonary Fibrosis Trust, UK
Pulmonary Fibrosis Trust, UK
- Website:
- http://www.pulmonaryfibrosistrust.org
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Helping people live with Pulmonary Fibrosis including financial help where necessary
-
Pulmonary Fibrosis UK
Pulmonary Fibrosis UK
- Website:
- www.pulmonaryfibrosis.org.uk
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Giving funding for research
-
Pulmonary Fibrosis Wales, UK
Pulmonary Fibrosis Wales, UK
- Website:
- http://www.pulmonaryfibrosiswales.co.uk
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
-
Pulmonary Hypertension Association "Moment Plus"Macedonia
Pulmonary Hypertension Association "Moment Plus"Macedonia
- Website:
- http://www.phmomentplus.com.mk/
- Covers:
- Pulmonary Vascular Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
Pulmonary Hypertension Association, UK
Pulmonary Hypertension Association, UK
- Website:
- http://www.phassociation.uk.com
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Pulmonary Hypertension Serbia (Plucna Hipertenzija Srbija)
Pulmonary Hypertension Serbia (Plucna Hipertenzija Srbija)
- Website:
- www.phserbia.rs
- Covers:
- Pulmonary Vascular Disease,sleep Disordered Breathing,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Pulmonary Hypertention - Ukrainian Rare Disease Association (PHURDA)
Pulmonary Hypertention - Ukrainian Rare Disease Association (PHURDA)
- Website:
- http://poryatunok.info/uk/
- Covers:
- Rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
-
Respira - Associação Portuguesa de Pessoas com DPOC e outras Doenças Respiratórias Crónicas
- Website:
- http://www.respira.pt
- Covers:
- Bronchiectasis,copd,pulmonary Vascular Disease,occupational Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
Respirlibre, France
Respirlibre, France
- Website:
- http://www.asthmamuseum.com
- Covers:
- Adult Asthma,copd,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Romanian Cystic Fibrosis Association
Romanian Cystic Fibrosis Association
- Website:
- http://afcr.ro/
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
- Donations to patients
-
Romanian National Alliance for Rare Diseases
Romanian National Alliance for Rare Diseases
- Website:
- http://www.bolirareromania.ro/
- Covers:
- Cystic Fibrosis,pulmonary Vascular Disease,sleep Breathing Disorders,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Roy Castle Lung Cancer Foundation, UK
Roy Castle Lung Cancer Foundation, UK
- Website:
- http://www.roycastle.org/
- Covers:
- Lung Cancer
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Tobacco control initiatives
-
Sarcoïdose Belangenvereniging Nederland (SBN)
- Website:
- http://www.sarcoidose.nl/
- Covers:
- Interstitial Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
SarcoidosisUK
SarcoidosisUK
- Website:
- http://sarcoidosisuk.org
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for sarcoidosis patients
- Providing support for sarcoidosis patients
- Raising awareness of sarcoidosis and advocating for patients
- Funding research into sarcoidosis
-
Schweizerische Sarkoidose-Vereinigung SSARV-AScS
Schweizerische Sarkoidose-Vereinigung SSARV-AScS
- Website:
- http://www.sarkoidose.ch/de/
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Working with the media
- Lungenliga Switzerland
-
Scottish Association for Sleep Apnoea
Scottish Association for Sleep Apnoea
- Website:
- http://www.scottishsleepapnoea.co.uk/
- Covers:
- Other Lung Diseases,sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
- Patient support without any medical input
-
Selbsthilfegruppe Schlafapnoe Österreich
Selbsthilfegruppe Schlafapnoe Österreich
- Website:
- http://www.schlafapnoe-shg.at/
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Raising public awareness of respiratory diseases
- Working with the media
- Communicate patients safety after general anaesthesia
-
Sleep Apnoea Trust Association, UK
Sleep Apnoea Trust Association, UK
- Website:
- http://www.sleep-apnoea-trust.org
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Working with the media
- Lobbying health departments or governments
-
Spitali Civil Korce, Albania
Spitali Civil Korce, Albania
- Website:
- Covers:
- Acute Lower Respiratory Infections,acute Respiratory Distress Syndrome,adult Asthma,bronchiectasis,copd,cystic Fibrosis,interstitial Lung Disease,lung Cancer,lung Disease In Children,pulmonary Vascular Disease,occupational Lung Disease,sleep Disordered Breathing,tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Stichting Astma Bestrijding, Netherlands
Stichting Astma Bestrijding, Netherlands
-
Stichting Voedselallergie
Stichting Voedselallergie
- Website:
- http://www.voedselallergie.nl/
- Covers:
- Other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Stowarzyszenie Walki z Rakiem Płuca, Poland
Stowarzyszenie Walki z Rakiem Płuca, Poland
- Website:
- http://www.rakpluca.org.pl/
- Covers:
- Lung Cancer
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
-
Swedish Asthma- an allergy association
Swedish Asthma- an allergy association
- Website:
- http://www.astmaoallergiforbundet.se
- Covers:
- Adult Asthma,childhood Asthma,lung Disease In Children
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Swiss Cystic Fibrosis Association (CFCH)
Swiss Cystic Fibrosis Association (CFCH)
- Website:
- http://www.cfch.ch
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
Swiss Groupe for Interstitial and Orphan Lung Diseases (SIOLD)
Swiss Groupe for Interstitial and Orphan Lung Diseases (SIOLD)
- Website:
- http://www.siold.ch
- Covers:
- Interstitial Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Recruiting patients for clinical trials
- Encouraging patients to complete surveys to help us learn more about patient experiences across Europe
-
Swiss Society for Pulmonary Hypertension (SSPH)
Swiss Society for Pulmonary Hypertension (SSPH)
- Website:
- http://www.sgph.ch
- Covers:
- Adult Asthma,copd,cystic Fibrosis,bronchiectasis,lung Disease In Children,tuberculosis,acute Lower Respiratory Infections,interstitial Lung Disease,childhood Asthma,acute Respiratory Distress Syndrome,lung Cancer,occupational Lung Disease,pulmonary Vascular Disease,sleep Disordered Breathing,other Lung Diseases,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
-
Take That TB, Germany
Take That TB, Germany
- Website:
- http://www.takethattb.com
- Covers:
- Tuberculosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
-
TB Alert, UK
TB Alert, UK
- Website:
- http://www.takethattb.com
- Covers:
- Tuberculosis
- Activities:
- Providing information for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
The Asthma Society of Ireland
The Asthma Society of Ireland
- Website:
- http://www.asthma.ie
- Covers:
- Adult Asthma
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Education of health care professionals and Fundraising
-
The Butterfly Trust, Scotland
The Butterfly Trust, Scotland
- Website:
- http://www.butterflytrust.org.uk
- Covers:
- Cystic Fibrosis,other Lung Diseases
- Activities:
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Providing social support and massage therapy in hospital
-
The Irish Sleep Apnoea Trust
The Irish Sleep Apnoea Trust
- Website:
- http://www.isat.ie
- Covers:
- Sleep Disordered Breathing
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
The June Hancock Mesothelioma Research Fund, UK
The June Hancock Mesothelioma Research Fund, UK
- Website:
- http://www.junehancockfund.org
- Covers:
- Other Lung Diseases,lung Cancer,occupational Lung Disease,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Giving funding for research
- Raising public awareness of respiratory diseases
-
The Norwegian Alpha-1-association
The Norwegian Alpha-1-association
- Website:
- http://www.lhl.no/Om-LHL/Interessegrupper/Alfa-1/
- Covers:
- Other Lung Diseases,rare And Orphan Lung Disease
- Activities:
- Providing information for patients
- Communicating with patients via social media
- Recruiting patients for clinical trials
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Reviewing questions for research surveys
-
The Norwegian Heart and Lung Patient Organization
The Norwegian Heart and Lung Patient Organization
- Website:
- http://www.lhl.no
- Covers:
- Copd,tuberculosis
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Giving funding for research
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Offering a helpline service for patients
- Providing advice for patients
- Providing information for patients
-
The Organisation for Respiratory Health in Finland
The Organisation for Respiratory Health in Finland
- Website:
- http://www.hengitysliitto.fi
- Covers:
- Adult Asthma,bronchiectasis,childhood Asthma,copd,cystic Fibrosis,lung Disease In Children,pulmonary Vascular Disease,sleep Disordered Breathing,tuberculosis,rare And Orphan Lung Disease,other Lung Diseases,occupational Lung Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Offering a helpline service for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
-
The Pleural Mesothelioma Center
The Pleural Mesothelioma Center
- Website:
- http://www.pleuralmesothelioma.com
- Covers:
- Lung Cancer,occupational Lung Disease
- Activities:
- Raising public awareness of respiratory diseases
- Helping patients communicate with other patients via forums and support groups
- Offering a helpline service for patients
- Providing information for patients
-
The Swedish Heart and Lung Association
The Swedish Heart and Lung Association
- Website:
- http://www.hjart-lung.se/
- Covers:
- Copd,tuberculosis
- Activities:
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Providing information for patients
- Giving funding for research
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
- Translating surveys into your language to enable the views of patients in your country to be heard
- Setting research priorities from the patient perspective
- Joining ELF Patient Advisory Committee to represent patients at a European level
-
Vaincre
Vaincre
- Website:
- http://www.elcwp.org/New/Fr/index.html
- Covers:
- Lung Cancer,occupational Lung Disease
- Activities:
- Lobbying health departments or governments
- Working with the media
- Communicating research and health policy to the public
- Raising public awareness of respiratory diseases
- Providing advice for patients
- Providing information for patients
-
WALCE Italy
WALCE Italy
- Website:
- http://www.womenagainstlungcancer.eu
- Covers:
- Lung Cancer,other Lung Diseases
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Working with the media
- Offering a helpline service for patients
-
Zdruzenie za Cisticna Fibroza, Macedonia
Zdruzenie za Cisticna Fibroza, Macedonia
- Website:
- http://www.cf.mk
- Covers:
- Cystic Fibrosis
- Activities:
- Providing information for patients
- Providing advice for patients
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Lobbying health departments or governments
-
Аssociation "Pulmonary Hypertension Patients Assistance", Belarus
Аssociation "Pulmonary Hypertension Patients Assistance", Belarus
- Website:
- http://phbelarus.by/
- Covers:
- Pulmonary Vascular Disease
- Activities:
- Providing information for patients
- Providing advice for patients
- Helping patients communicate with other patients via forums and support groups
- Communicating with patients via social media
- Helping patients communicate with other patients via forums and support groups
- Raising public awareness of respiratory diseases
- Communicating research and health policy to the public
- Working with the media
- Lobbying health departments or governments
