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Task Forces

The European Respiratory Society (ERS) funds experts in lung health to produce documents that give healthcare professionals guidance on how to diagnose, treat and manage different lung conditions and related issues. These are developed by groups called task forces.

We involve patients at the different stages of ERS task forces to:

Download a summary of our patient input process.

You can also suggest a topic for a task force. Is there a specific topic or issue in the diagnosis, treatment or management of a lung condition that you think healthcare professionals and/or people with a lung condition across Europe need recommendations on? Perhaps there is no existing guidance or you think more or different recommendations are needed. To suggest a topic or for more information go to the online form.

 

  • Chronic cough

    Aim of Task Force

    To look at the research on cough to decide if a cough that does not go away after 8 weeks should be treated as a separate lung condition, rather than as a symptom of another condition.

    Patient input

    People with the condition were invited to share their experiences via an online survey. A presentation on the patients’ feedback was given at ERS Congress 2013. The paper on the patient survey was published in the Lung Journal in 2015

    Summary

    A factsheet on the topic has been produced and is available on the ELF website.   

    The full guidelines were published as a paper in the European Respiratory Journal in 2014 and available on the ERS e-learning site.

  • People with lung conditions who smoke

    Aim of Task Force

    To find out if being diagnosed with a lung condition changes the way that smokers think about smoking and trying to quit, what they think of different treatments, and how doctors and nurses talk to them about smoking.

    Patient input

    People with lung condition who smoke were invited to share their experiences via an online survey. 

    The research will be published in a medical journal in 2016.

    Summary

    A factsheet on the topic has been produced and is available on the ELF website. 

    The full guidelines were published as a paper in the  European Respiratory Journal in 2015 and available on the ERS e-learning site.

     

  • Pulmonary Rehabilitation

    Aim of Task Force

    To provide guidelines on pulmonary rehabilitation for people with lung diseases 

    Patient input 

    People with the condition were invited to review the guidelines and give feedback. The feedback was reported to the Task Force and used to develop a public version of the guidelines.

    Summary  

    The public version of the guidelines is now available to download. The full guidelines are published as a paper in the American Journal of Respiratory and Critical Care Medicine (AJRCCM) and available on the ERS e-learning site.

  • COPD and physical activity

    Aim of Task Force

    To provide guidelines on physical activity for people with chronic obstructive pulmonary disease (COPD) by reviewing all the research on the topic.

    Patient input

    People with the condition were invited to review the guidelines and give feedback. The feedback was reported to the Task Force and will be used to develop a factsheet on topics covered in the guidelines.

    Summary

    A factsheet on topics covered in the guidelines is on the ELF website.

    The full guidelines are published as a paper in the European Respiratory Journal and available on the ERS e-learning site.

     
  • Severe Asthma

    Aim of Task Force

    To provide guidelines on the diagnosis and treatment of severe asthma using the latest research and expertise from across Europe.

    Patient input

    People with the condition were invited to review the guidelines and give feedback. The feedback was reported to the Task Force and used to develop a public version of the guidelines. 

    Summary

    The public version of the guidelines is now available to download here in English, in Serbian and in Portuguese. Other language versions can be accessed by changing the language of the website at the top of the page.

    A factsheet of difficult-to-treat and severe asthma is also available.

    The full guidelines are published as a paper in the European Respiratory Journal and available on the ERS e-learning site.

     

  • Idiopathic Pulmonary Fibrosis

    Aim of Task Force

    To review guidelines on IPF published in 2011, to include new research on treatments and include the patients’ perspective.

    Patient Input

    People with the condition and patient organisations were invited to give feedback via focus groups held across Europe.

    Summary

    The feedback will be included in the guideline document. When the full guidelines are published the public version will be put on the ELF website. 

    The full guidelines will be available on the ERS e-learning site.

     

  • Telemonitoring in Home Mechanical Ventilation

    Aim of Task Force

    To analyse the current state of HMV services and agree a statement on standard procedures, equipment and facilities. To include the patients’ perspective on people's experiences of home mechanical ventiliation (HMV) and their recommendations for current and future practice. 

    Patient Input

    A small working group of patients were asked to contribute to the development of the survey. People affected by the condition were invited to share their experiences via an online survey. 

    The research will be published in a medical journal in 2016.

    Summary

     When the full guidelines are published the public version and patient survey paper will be put on the ELF website. 

    The full guidelines will be available on the ERS e-learning site.

  • Diagnosis of Primary Ciliary Dyskinesia

    Aim of Task Force 

    To learn more about peoples’ experience of being diagnosed with PCD and produce guidelines to improve how people with PCD are diagnosed in future. 

    Patient Input

    A patient survey was developed in collaboration with ELF. A small working group of patients were asked to contribute to the development of the survey and review the analysis. People affected by the condition were invited to share their experiences via an online survey.

    A presentation on the patients’ feedback was given at ERS Congress 2015. 

    The survey research was published in the European Respiratory Journal in October 2016.

    Summary

    The feedback will be included in the guideline document. When the full guidelines are published the public version will be put on the ELF website. 

    The full guidelines will be available on the ERS e-learning site.

  • Pulmonary rehabilitation policy

    Aim of Task Force 

    To improve access to pulmonary rehabilitation services by developing an official policy statement on how pulmonary rehabilitation should be delivered worldwide. 

    Patient Input

     

    A small working group of patients were asked to contribute to the development of the survey. People affected by the condition were invited to share their experiences via an online survey.

    A poster discussion on the patients’ feedback was given at ERS Congress 2015, and a presentation at the Guideline International Network Conference 2015. 

     

    The research will be published in a medical journal in 2016.

    Summary

    The patient feedback is referenced in the guideline document. 

    The full guidelines are published as a paper in the American Thoracic Society Blue Journal and available on the ERS e-learning site.

  • Primary spontaneous pneumothorax (PSP)

    Aim of Task Force 

    To improve the identification, treatment and recurrence of primary spontaneous pneumothorax (PSP) by developing European guidelines for healthcare professionals.

    Patient Input

    People with the condition were invited to review the guidelines and give feedback. The feedback was reported to the Task Force and used to develop a public version of the guidelines.  

    Summary

    factsheet on the topic has been produced and is available on the ELF website. 

    The full guidelines will be available on the ERS e-learning site.

  • Lung cancer

    Aim of Task Force 

    A systematic review and guideline on various aspects of quality in thoracic oncology care.

    Patient Input

    The Patient Advisory Group brought together for the lung cancer Patient Priorities pilot project will provide input to this Task Force and also advise on accessing wider patient input.

    Summary

    When the full guidelines are published the public version will be put on the ELF website.

    The full guidelines will be available on the ERS e-learning site.

  • Bronchiectasis

    Aim of Task Force 

    ELF is involved in a number of projects looking at bronchiectasis:

    • New guidelines on bronchiectasis will be published Spring 2017.
    • An ERS Task Force to develop a roadmap (guide) on the research needed to improve the situation for people with bronchiectasis living across Europe 
    • Informing the ongoing development of the ERS clinical research collaboration to create a Europe-wide bronchiectasis registry. This initiative is called EMBARC (European Multicentre Bronchiectasis Audit and Research) Collaboration) 
    • An EU-funded project called iABC (inhaled antibiotics in bronchiectasis and cystic fibrosis) to develop better inhaled antibiotics for people with bronchiectasis and with cystic fibrosis 
    • Development of an online educational resource for doctors and patients on the treatment and management of bronchiectasis, funded by ERS. 

    Patient Input

    We have formed a patient advisory group (PAG) consisting of people with bronchiectasis and parents of children with bronchiectasis from across Europe, who provide input to all these projects. Members can nominate themselves to focus on or sit on the boards of specific projects.

    Summary

    An article on research priorities (roadmap) was published in European Respiratory Journal in June 2016.

    Updates and publications will be available on the ELF website and via the ELF newsletter.

  • Electronic cigarettes

    Aim of Task Force 

    To analyse the current and developing body of information on electronic cigarettes and deliver an evidence-based assessment.

    Patient Input

    People with respiratory conditions reviewed the literature search process and gave feedback on the research questions.
    Individuals with respiratory conditions and experience of electronic cigarettes will be invited to review the draft statement.

    Summary

    The statement will be published in a medical journal in 2017.

    Updates will be available on the ELF website.

  • Bronchopulmonary dysplasia

    Aim of Task Force

    To develop a clinical practice guideline on the long term management of bronchopulmonary dysplasia (BPD). 

    Patient input

    Parents of children with BPD and individuals with experience of the condition are invited to join a patient advisory group to focus on the patient needs the treatment and monitoring of BPD to provide input into the Task force.

    Contact Jeanette Boyd if you are interested in joining the patient advisory group. 

    Summary

    The guidelines will be published in a European Journal in 2018.